Epilepsy is a part of who I am. But it’s not more than that. Maybe I’m being overly sensitive here, but I just think that when one describes oneself as an epileptic it has the potential to limit them from seeing themselves as anything more than someone who has seizures. And I’m not saying we shouldn’t talk about it – in fact, I think it’s really important to be open and honest about my epilepsy. But at the same time, I don’t want to be defined by it. I have epilepsy but I’m not an epileptic, I refuse to be defined by my disorder.
One of my pet peeves is how people use the term “epileptic.” It irks me when it’s used to describe people with epilepsy. I am not an epileptic. I’m not defined by the disorder I have. I’m many things: a teen, an environmentalist, a vegetarian, a guitar player, a female, a Canadian, a girl. And I happen to have brown eyes, brown hair, straight teeth … oh, and epilepsy.